Varmasti useimmat meistä samassa tilanteessa olevat joutuvat kohtaamaan asian vähättelyä ja luulosairaaksi leimaamista. Se on todella ikävää, koska taatusti kaikki meistä vaihtaisivat tämän sairauden terveeseen ja riskittömämpään elämään ihan milloin tahansa. Ymmärtääkseni joudumme myös elämään sairautemme kanssa lopun elämämme tavalla tai toisella, sillä tämä ei ole flunssan lailla ohimenevää, vaikka oireet välillä helpottaisivatkin. Ja jos tilanne menee niin pahaksi kuin esimerkiksi Outilla, valtaa oireilu kaikki elämän osa-alueet, eikä pelkästään jotain tiettyä tilaa.
Asiallisen tiedon levittämiseksi ja tiedostamisen parantamisen takia on meneillään "Oikeesti sairas" -kampanja 1.3.-31.5.2015, johon voi tutustua tarkemmin Terve sisäilma -sivustoilla. Tämän asian kanssa kamppailevat tarvitsevat paitsi vertaistukea, myös terveiden ihmisten hyväksyntää.
This time my subject is very personal, I haven't talk about it much in public. Outi challenged me to write about this, she is in much deeper in this shit than I am right now. We are both developing this sickness caused by poor indoor air quality and mold. I was exposed for years, and even if I had symptoms almost immediately in certain environment, I just tried to struggle with them and go on. Diversity of symptoms was so insidious that I realized only one year ago that all that overwhelming tiredness, inertia of my brains, irritability, feeling like shit and arthralgia was caused because of mold exposing. For a long time I took attention only those symptoms I could notice from outside, as redness of my sore eyes and bad cough. Those were only a small part of this bad feeling that was holistic. I made a radical decision and made a huge life change last summer . That gave me a chance to heal myself in fresh air. After three months my body was so clarified that I didn't have any symptoms anymore and I had strength to work as an ant again and I could enjoy little things of life. I went back to study later in last autumn - and I went from bad to worse, because both the university and my student-house have so poor indoor air quality that my condition was even worse than before. I still need to hang on little longer, and try to fix everything during the summer.
I'm pretty sure most of us are forced to face case-deprecation and labeled as hypochondriac. That is really sad, because we all would change this sickness for health and more risk-free life anytime, I'm sure of that. If I've understood it right, we need to handle this situation the rest of our lives, this is not going away as flu does, even if you can get rid of the symptoms by time to time. And if your situation is as bad as Outi's, those symptoms are going to overtake every part of your life, and not just specific area.
For spreading factual knowledge there is a "Really being sick" -campaign going on 1.3.-31.5.2015. If you are interested in this, you can read more from Terve sisäilma pages (Healthy indoor air). People struggling with this thing need not just support from other sick persons but acceptance from healthy people.